Thoughts, Feelings, Emotions, Ideas...

Obviously we all have one thing in common; this disease. However just as the pattern of CF and its development and progression differs from person to person, we are all unique individuals, with different ideas opinions and thoughts.

One of the things I have found most invaluable about my friendships with other pwcf is learning about their experiences and perspectives. Whilst they may differ from yours, and some you may not even agree with, it can be highly beneficial to have insight into another persons mind, plus for me, reading many other people's experiences has been ultimately humbling, fascinating and inspiring. This page contains articles and accounts written by various pwcf, and others touched by cystic fibrosis in some way. Some are factual, others opinions, some with happy memories, others may be harder to read.

"Would you consider a transplant should the need arise? For what is ostensibly such a spectacular question, my response is always, “What for?” which is very unspectacular." "I was wheeled back to the ward and asked to pee in a pot.  You're pregnant.  After years of not bothering with the pill I was pregnant.  Aged 33 and awaiting a likely diagnosis of liver cancer.  Good timing!" "I realised though that my fears were not about my own future, but instead were focused on the terrifying thought that this could happen to Frances Ann.  And that all the sisterly love in the world could not protect her."   "When planning for my/our child, I’d thought about all the CF aspects in great detail but had never thought what would happen if something else went wrong. Well, you wouldn’t would you? My glass is usually half full, not the other way round"   "Why should I put us both through the inevitable turmoil of a relationship?  It wasn’t fair on either of us I thought as, like most pwcf, I was very good at not burdening other people, preferring to trundle along, snail like, under my load."

 

Like what you see? Some of these articles have been written for and/or printed in Talk Magazine; a magazine produced by and for Adults with Cystic Fibrosis. For further information on Talk, including how to get hold of a copy or contribute an article, email cftalk@cftrust.org.uk to find out more.

 Please remember when reading each person's contribution that it is simply a personal account, and none of the information contained within the article should be taken as concrete fact. If you have a concern or query relating to anything discussed in this section, please email us and we will do our best to help.

(Disclaimer: The above are personal thoughts and experiences and should not be taken as medically correct):

Do you have an area or experience you would like to write about? If so please send your contribution to webmaster@pwcf.net. Unfortunately we may not be able to display all articles received.